Publications
21
Citations
166
Est. group size
—
Recurring co-author estimate
Active years
13
Publishing since 2014
Mary Wojnaroski's research focuses on severe childhood epilepsy conditions such as Dravet syndrome, Lennox-Gastaut syndrome, and SCN1A/SCN2A-related developmental and epileptic encephalopathies, often occurring alongside autism and intellectual disability. Much of the work centers on developing and validating ways to measure quality of life, cognition, and meaningful outcomes for children who have severe communication and functional impairments, frequently using caregiver reports and patient/family input to inform clinical care and trial design.
Publication activity was minimal or absent from 2017-2022 but has grown steadily since 2023, reaching a sustained pace of several papers per year through 2025-2026.
Generated by claude-sonnet-5 from public bibliographic data · Jul 20, 2026
- Caregiver-reported quality of life in individuals with developmental and epileptic encephalopathy and other severe neurodevelopmental encephalopathies
Quality of Life Research · 2026
- Characterizing early behavioral and social–emotional problems in young children with <scp> <i>SCN1A</i> </scp> + Dravet syndrome: Findings from the <scp>ENVISION</scp> prospective natural history study
Epilepsia · 2026
- Advancing Mental Health Equity in Epilepsy: Social Determinants of Health Across the Lifespan
Epiliepsy currents/Epilepsy currents · 2026
- From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability
Quality of Life Research · 2026
- Autism and epilepsy: Moving beyond prevalence estimates to developmentally informed models of clinical care and research
Developmental Medicine & Child Neurology · 2026
- Validity Data for the Developmental Profile-4 in Individuals With Profound Intellectual and Multiple Disabilities and Developmental Epileptic Encephalopathies
American Journal on Intellectual and Developmental Disabilities · 2026
- Caregiver‐reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed‐methods design
Developmental Medicine & Child Neurology · 2025
- Impact of non-seizure outcomes and caregiver priorities for young people with severe neurodevelopmental encephalopathy with or without epilepsy: A community survey
European Journal of Paediatric Neurology · 2025
- Cognitive stagnation and executive function deficits in young children with <scp> <i>SCN1A</i> </scp> + Dravet syndrome: Detailed characterization of onset, progression, and impact in the <scp>ENVISION</scp> natural history study
Epilepsia · 2025
- Multidisciplinary Intervention for Children With Epilepsy and Autism Spectrum Disorder Admitted for EEG
Neurology Clinical Practice · 2025
- Navigating the Diagnosis: A survey on Caregivers’ Journeys to Lennox-Gastaut Syndrome
Epilepsy & Behavior · 2025
- Quality of life in individuals with Lennox-Gastaut syndrome and their families
Seminars in Pediatric Neurology · 2025
- Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials
Therapeutic Advances in Rare Disease · 2024
- Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder
Epilepsy & Behavior · 2024
- The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes for Rare Diseases: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy
Value in Health · 2024
- Epilepsia×3
- Quality of Life Research×3
- Epilepsy & Behavior×2
- Developmental Medicine & Child Neurology×2
- Neurology×1
- John R. Mytinger
Medicine · The Ohio State University
- Jaime‐Dawn E. Twanow
Medicine · The Ohio State University
- Adam P. Ostendorf
Medicine · The Ohio State University
- Jacy L. Wagnon
Medicine · The Ohio State University
- Margie Ream
Medicine · The Ohio State University
This profile was generated automatically from public scholarly data (OpenAlex). Group size and activity levels are estimates derived from co-authorship patterns.
Last updated Jul 19, 2026.
Claim or correct this profile