Publications
121
Citations
1,309
Est. group size
~11
Recurring co-author estimate
Active years
16
Publishing since 2011
Susan E. Creary's research focuses on improving care for children and adolescents with sickle cell disease, particularly around the use of hydroxyurea, a medication that reduces disease complications. Her work examines how to help young patients and their families take this medication consistently (adherence), how to support shared decision-making between families and healthcare providers, and how to measure and improve the overall quality of care these children receive. Much of her research involves clinical trials, care-quality audits, and tools like electronic adherence monitors and telehealth to support treatment.
Publication output has grown substantially over the last decade, rising from single digits per year in 2017-2019 to a peak of 20 in 2023, with sustained high output (14-16/year) through 2024-2025.
Generated by claude-sonnet-5 from public bibliographic data · Jul 20, 2026
- Adding to the Sickle Cell Disease Burden: Rising Hydroxyurea Costs Demand Action
Pediatric Blood & Cancer · 2026
- Engaging Parents of Children With Sickle Cell Disease in Shared Decision‐Making for Hydroxyurea: The ENGAGE‐HU Study
Pediatric Blood & Cancer · 2025
- Describing the feasibility and acceptability of an electronic adherence monitor to measure hydroxyurea adherence among youth with sickle cell disease
Blood · 2025
- Practical guide for disease-modifying medication management of children and adolescents with sickle cell disease
Hematology · 2024
- Study protocol for ADHERE (Applying Directly observed therapy to HydroxyurEa to Realize Effectiveness): Using small business partnerships to deliver a scalable and novel hydroxyurea adherence solution to youth with sickle cell disease
PLoS ONE · 2024
- Empowering people through health education
2024
- Assessing the Quality of Care for Children With Sickle Cell Anemia: We Are Still Failing
PEDIATRICS · 2024
- Adherence to hydroxyurea and clinical outcomes among children with sickle cell anemia
Pediatric Blood & Cancer · 2023
- Psychologists as leaders in equitable science: Applications of antiracism and community participatory strategies in a pediatric behavioral medicine clinical trial.
American Psychologist · 2023
- Reply to: Comment on: “Adherence to hydroxyurea and clinical outcomes among children with sickle cell anemia”
Pediatric Blood & Cancer · 2023
- Telehealth Use Before and During the COVID-19 Pandemic Among Children with Sickle Cell Anemia
Telemedicine Journal and e-Health · 2022
- Hydroxyurea Use Among Youth with Sickle Cell Anemia across Eight Care Centers within the United States
Blood · 2022
- Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia
Blood · 2022
- Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial
JMIR Research Protocols · 2021
- Trends in quality of care among children with sickle cell anemia
Pediatric Blood & Cancer · 2021
- Blood×25
- Pediatric Blood & Cancer×22
- Blood Advances×13
- American Journal of Hematology×4
- The Journal of Pediatrics×2
- Regina D. Crawford
Medicine · The Ohio State University
- Seethal A. Jacob
Medicine · Indiana University
- Payal Desai
Medicine · The Ohio State University
- Andrew RW O’Brien
Medicine · Indiana University
- Derrick L. Goubeaux
Medicine · Indiana University
This profile was generated automatically from public scholarly data (OpenAlex). Group size and activity levels are estimates derived from co-authorship patterns.
Last updated Jul 19, 2026.
Claim or correct this profile